What is juvenile dermatomyositis?
Juvenile dermatomyositis (JDM) is a rare disease that causes muscle inflammation and a skin rash. It’s different from other muscle diseases because it also causes skin problems. Symptoms often first appear in children between ages 5 and 10. Children with JDM have weakness in the muscles around their neck, shoulders, and hips. They also have a skin rash around certain areas such as the eyelids, knuckles, and finger joints.
What causes juvenile dermatomyositis?
The exact cause is not yet known. But it may be linked to problems with the immune system that result in infections.
What are the symptoms of juvenile dermatomyositis?
JDM symptoms often appear slowly over time. In some cases, they may happen more quickly or severely. Each child’s symptoms may vary. The most common symptoms include:
- Rash around the eyelids, knuckles, or finger joints
- Rash on the elbows, knees, and ankles
- Muscle weakness
- Lack of energy (fatigue)
- Ill feeling (malaise)
- Muscle pain and soreness
- Irritable mood
- Trouble swallowing
- Weight loss, due to trouble swallowing
- Joint pain and inflammation
- Calcium deposits under the skin (calcinosis)
- Mouth ulcers
- Muscles wasting away (muscle atrophy)
- Some muscles may become paralyzed in a contracted position
These symptoms can seem like other health conditions. Make sure your child sees his or her healthcare provider for a diagnosis.
How is juvenile dermatomyositis diagnosed?
Your child’s healthcare provider will take your child’s medical history and do a physical exam. Your child may also have tests, such as:
- Blood tests. These tests are used to assess the presence of antibodies, muscle enzymes, and signs of inflammation.
- Electromyelogram (EMG). This is an electrical test that may be done to find nerve or muscle damage.
- MRI. This test uses large magnets and a computer to look for inflammation in the body.
- Muscle and skin biopsy. Tiny tissue samples are removed and checked under a microscope.
How is juvenile dermatomyositis treated?
Your child’s healthcare provider will figure out the best treatment plan for your child based on:
- How old your child is
- Your child’s overall health and medical history
- How sick your child is
- How well your child handles certain medicines, treatments, or therapies
- If your child’s condition is expected to get worse
- The opinion of the healthcare providers involved in your child’s care
- Your opinion and preference
There is no cure for JDM, but the symptoms can be managed. The disease may go into remission. This means the symptoms will go away. Treatments may include:
- Medicines. These are used to treat inflammation and skin symptoms.
- Physical and occupational therapy. This can help to improve muscle function and strength.
- Sunscreen. Using sunscreen helps to prevent more irritation or damage to the skin.
- Nutrition. A healthy diet will help support the body during the disease.
Talk with your child’s healthcare provider about the risks, benefits, and possible side effects of all medicines.
What are the complications of juvenile dermatomyositis?
Many children will recover from JDM without any lasting problems. Some children may have mobility issues due to contractures of the joints. Other children may have ongoing (chronic) symptoms. These may include pain, muscle weakness, and delayed growth. There may be damage to bones, joints, lungs, and other internal organs.
Helping your child live with juvenile dermatomyositis
Juvenile dermatomyositis can make it hard for a child to take part in school and other activities. Work with your child’s school to help teachers and caregivers understand your child’s limits. A healthy lifestyle can help improve your child’s quality of life. This includes a good diet, exercise, and rest. A support group may help your child feel less alone or different.
When should I call my child’s healthcare provider?
Tell the healthcare provider if your child’s symptoms get worse or there are new symptoms.
Key points about juvenile dermatomyositis
- Juvenile dermatomyositis (JDM) is a rare disease that causes muscle inflammation and a skin rash.
- Symptoms often first appear in children between ages 5 and 10.
- Symptoms include fever, rash, muscle weakness and pain, and calcium deposits under the skin.
- The condition also causes a rash around the eyelids, knuckles, or finger joints. A rash may also occur on the elbows, knees, and ankles.
- Some children may have a complete remission of the disease. Others may have chronic symptoms that continue.
Tips to help you get the most from a visit to your child’s healthcare provider:
- Know the reason for the visit and what you want to happen.
- Before your visit, write down questions you want answered.
- At the visit, write down the name of a new diagnosis, and any new medicines, treatments, or tests. Also write down any new instructions your provider gives you for your child.
- Know why a new medicine or treatment is prescribed and how it will help your child. Also know what the side effects are.
- Ask if your child’s condition can be treated in other ways.
- Know why a test or procedure is recommended and what the results could mean.
- Know what to expect if your child does not take the medicine or have the test or procedure.
- If your child has a follow-up appointment, write down the date, time, and purpose for that visit.
- Know how you can contact your child’s provider after office hours. This is important if your child becomes ill and you have questions or need advice.
1351Baby shower guest sign in ideas
2533Boy baby shower decorations ideas
1607Girl baby shower favors ideas
1791TOP 10 Girl baby shower themes ideas for 2017
600Baby shower fruit tray ideas
3923Baby shower snack ideas pinterest
4319Baby shower afternoon tea ideas
1909Purchase The Special Twin Baby Shower Cakes From Your Local Stores
4291High tea baby shower ideas – 10 ways to have a High tea baby shower party!
2553TOP 10 Baby girl baby shower food ideas
218710 Useful Triplet baby shower ideas for you!
2463Baby shower ideas pinterest boy
554Welcoming a Baby Angel in Style with the Best Baby shower souvenir ideas
2041Planning a Baby shower program ideas – detailed guide
4315Baby shower centerpieces ideas pictures – 10 methods to brighten your baby shower party
23689It is Safe to Eat Raw Meat – A Guide to Choosing the Right Type
3165Baby shower charades ideas
4327Baby shower onesie ideas – 10 secrets to know
2963Baby shower diaper decoration ideas
2973Baby shower boy food ideas
1913Centerpieces ideas for baby shower
1499Baby shower games idea
3741Baby shower invites wording ideas
266Jungle baby shower ideas
358Monsters inc baby shower ideas
2543Casual baby shower ideas
3351Diy baby boy shower gift ideas
2805Baby shower centerpiece ideas for boys
1048Sock monkey baby shower ideas
4147Baby boy shower party ideas
3075Dr seuss baby shower cake ideas
3125Centerpiece ideas for baby shower for boy
988Twin baby shower theme ideas
1068Brunch baby shower menu ideas
2869Cheap ideas for a baby shower
2149Quick baby shower ideas